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dc.creatorValadas, A.
dc.creatorContarino, M-F.
dc.creatorAlbanese, A.
dc.creatorBhatia, K. P.
dc.creatorFalup-Pecurariu, C.
dc.creatorForsgren, L.
dc.creatorFriedman, A.
dc.creatorGiladi, N.
dc.creatorHutchinson, M.
dc.creatorKostic, V. S.
dc.creatorKrauss, J. K.
dc.creatorLokkegaard, A.
dc.creatorMarti, M. J.
dc.creatorMilanov, I.
dc.creatorPirtosek, Z.
dc.creatorRelja, M.
dc.creatorSkorvanek, M.
dc.creatorStamelou, M.
dc.creatorStepens, A.
dc.creatorTamas, G.
dc.creatorTaravari, A.
dc.creatorTzoulis, C.
dc.creatorVandenberghe, W.
dc.creatorVidailhet, M.
dc.creatorFerreira, J. J.
dc.creatorTijssen, M. A.
dc.date.accessioned2018-03-01T16:46:09Z
dc.date.available2018-03-01T16:46:09Z
dc.date.issued2016
dc.identifier.issn1351-5101
dc.identifier.issn1468-1331
dc.identifier.urihttps://vinar.vin.bg.ac.rs/handle/123456789/986
dc.description.abstractBackground and purposeDystonia is difficult to recognize due to its large phenomenological complexity. Thus, the use of experts in dystonia is essential for better recognition and management of dystonia syndromes (DS). Our aim was to document managing strategies, facilities and expertise available in various European countries in order to identify which measures should be implemented to improve the management of DS. MethodsA survey was conducted, funded by the Cooperation in Science and Technology, via the management committee of the European network for the study of DS, which is formed from representatives of the 24 countries involved. ResultsLack of specific training in dystonia by general neurologists, general practitioners as well as other allied health professionals was universal in all countries surveyed. Genetic testing for rare dystonia mutations is not readily available in a significant number of countries and neurophysiological studies are difficult to perform due to a lack of experts in this field of movement disorders. Tetrabenazine is only readily available for treatment of dystonia in half of the surveyed countries. Deep brain stimulation is available in three-quarters of the countries, but other surgical procedures are only available in one-quarter of countries. ConclusionsInternationally, collaboration in training, advanced diagnosis, treatment and research of DS and, locally, in each country the creation of multidisciplinary teams for the management of dystonia patients could provide the basis for improving all aspects of dystonia management across Europe.en
dc.relationEuropean Cooperation in Science and Technology (COST) Action [BM1101]
dc.rightsrestrictedAccessen
dc.sourceEuropean Journal of Neurologyen
dc.subjectdystoniaen
dc.subjectdystonia managementen
dc.subjectdystonia treatmenten
dc.subjectEuropeen
dc.subjectsurveyen
dc.titleManagement of dystonia in Europe: a survey of the European network for the study of the dystonia syndromesen
dc.typearticleen
dc.rights.licenseARR
dcterms.abstractФриедман, A.; Aлбанесе, A.; Фалуп-Пецурариу, Ц.; Тзоулис, Ц.; Видаилхет, М.; Хутцхинсон, М.; Стамелоу, М.; Реља, М.; Тијссен, М. A.; Гилади, Н.; Форсгрен, Л.; Бхатиа, К. П.; Цонтарино, М-Ф.; Валадас, A.; Марти, М. Ј.; Краусс, Ј. К.; Костиц, В. С.; Ферреира, Ј. Ј.; Локкегаард, A.; Ванденбергхе, W.; Пиртосек, З.; Миланов, И.; Таравари, A.; Скорванек, М.; Тамас, Г.; Степенс, A.;
dc.citation.volume23
dc.citation.issue4
dc.citation.spage772
dc.citation.epage779
dc.identifier.wos000372972300020
dc.identifier.doi10.1111/ene.12940
dc.citation.rankM21
dc.identifier.pmid26826067
dc.type.versionpublishedVersion
dc.identifier.scopus2-s2.0-84957991584


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